History

Just a little background information. I am a mother of two girls one is 8 and the other is 4 months old. It has been a long 4 months so far. Lisa was born with Aphatic Congenital Cataracts and Bilateral Clubfoot. She is doing really well. My husband and I were expecting her to have the cataracts but were not ready to hear that she also had clubfoot. She underwent her first surgery at 2 weeks old for the cataracts. Lisa was also has casts on both legs for the first 9 weeks and now wears a shoes with a brace to keep them at the right angle for 23 hours a day. She ended up having to have 4 surgeries total. After the first two surgeries, scar tissue had formed in her pupil area in both eyes. She now has contacts in both eyes that corrects for her not having the natural lens. We had heard a lot about Interocular Lens Implants. But the medical profession had only been doing them in babies for a couple of years. Even if we had decided to do that she would have had to wear contacts anyway. With her vision changing so much in the first few years my husband and I decided to just have Lisa wear contacts. The doctor was able to leave the capsule in which the lens sits in. Which means that when Lisa is an adult she will be able to get a Interocular Lens Implant if she chooses. We tried to read up on congenital cataracts, but there just isn't much information. Most of the articles out there are for children that have cataracts because of a disease. Down syndrome or some other condition. I am thankful that my husband and father-in-law both have this condition and know what to expect. I don't know what I would do if this is the first time I had seen it. It is still hard to see your newborn go through this. The first weekend was the worst and then progressively got easier. She currently has a cloudy area forming on the top of the Iris. She will be going to the doctor in a couple of days to have it checked out. I am hopping for the best but expecting the worst. Lisa is a happy baby despite all that has happened to her over the last few months. I have enrolled her in the Birth to 3 program. They will have an Occupational Therapist and a teacher come and visit every 2 weeks. They will work with her to make sure that she is meeting her developmental milestones. So far she is meeting them. I work with her during the day and my husband does during playtime at night. We have her on a set schedule, every night at 7 p.m she has her shoes off till 8 p.m. After I put the shoes back on we go in the bathroom to remove her contacts. Then she gets her last bottle of the night and falls asleep in my arms by 9 p.m and then sleeps till about 7:30 or 8 a.m. She is a wonderful little girl. She only cries when her diaper needs changing, hungry, or has a tummy ache from a bubble. Other than that she is always smiling. :) Lisa is a mommy's girl. She is starting to warm up to daddy more. Once she is 2 she will be a daddy's girl just like her older sister.